Alone we are
strong.
Together we are stronger.
A community for parents with NICU babies and support for rare Diagnoses
MEMBER STORY: LUCAS JOHN CULP
On March 6, 2018, Lucas was born. He was reported to be a healthy baby boy and our family was elated. Soon Lucas began to show signs of lethargy and not eating well. They were not overly concerned at first but as discharge time was drawing closer his nurse had a strong feeling something was just not right.
When time stopped.
After about 24 hours and many doctors consults they again transferred us to the children’s hospital to be seen by the specialist staff there in the NICU. This is where we learned how time can literally stop. Every minute felt like a day and every day a month. It was the longest two weeks we can ever remember experiencing in our lives.
